November

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Aches and Pains

It’s the end of November, and it’s the same old story…overall, feeling fine physically and mentally, and, for the most part, enjoying my new job.  I continue to battle leg and foot cramps (and some pain), and, I believe, the early cold weather here in Memphis has contributed to my symptoms.  Other than my aches and pains, the month was not particularly telling in my continued journey with melanoma.  On the personal front, however, November brought a lot of new experiences and soon-to-be great memories.


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Just not right….
We ended October and started November with a trip behind enemy lines – Knoxville, Tennessee.  We were there because Zach has a chance at a nice scholarship at UT, and one of the requirements is that he “shadow” a current student for a day.  I’ve never spent much time in Knoxville, and, as I posted on Facebook several weeks ago, I enjoyed walking around downtown Knoxville, which was quite neat and clean.  Yet, it was still Knoxville – home of the Vols and land of orange.  If Zach ends up there, I guess I’ll adapt.

– – – 

On November 17th, I got to spend part of the day with Scott Terle, who was in town visiting family.  Scott and I go all the way back to high school and, following my back surgery in 2011, I began to reconnect – via Facebook – with Scott and many others from back home.

It was great seeing Scott and spending the time rehashing old memories of King High School and Temple Terrace, Florida (where I grew up).  What I really enjoyed, however, was learning about Scott’s amazing (my word, not his) journey from young adulthood to middle age.  Scott has certainly had a full life – as I think many of us have had – with all the ups and downs that each of us deal with everyday.  Yet, Scott has an amazing (there’s that word, again) spirit that I wish I could bottle and give to others.  He has a great perspective on his world and the world around him along with a want to make a difference in ways that truly matter.  I’m probably embarrassing him right now, but it’s for a good cause.

As I said above, I wish I could bottle that energy or fortitude, or whatever you call it.  I could certainly use some of it, myself.  The journey continues to take a toll on my perspective, at times, so the busier and more focused I stay, the better my outlook.  It was time spent with Scott that helped lift me from my weekly doldrums and renew my perspective on my cancer.

Now if I can maintain that perspective through the holidays….

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We ended November with Thanksgiving and the early arrival of winter.  Emily came home from college, and our family time was fun, but too short.  We even enjoyed a brief respite from the cold, which my guardian – Nixie – thoroughly loves!  She’s bred for cold, wet weather, and this time of year is her favorite.  Romping through the leaves, chasing squirrels, and simply being outside.  It’s also my favorite time of the year as well.

As the holidays approach, I try to keep my thoughts on my family.  I want to make certain that I enjoy our times together.  I anticipate many more years to come, but there will always be “those thoughts” in the back of my head.  So, I say a few prayers and continue moving forward.  What else is there to do?

Thanks, as always, for your time.

On guard and on duty…

Week Ten

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October 28, 2013   This is week ten of my treatment.  As you will see below, I have a couple of items to note about this week and the coming week.  Also, please note that I will begin posting every two or three weeks since my status has not changed significantly.
The biggest challenge for me lately has been leg and foot cramps – extreme in some instances.  Cramping and pain are an unfortunate side-effect of Gleevec. It’s a known side effect, and for some patients the cramping and pain can become so extreme that they have to stop taking the medicine.  My leg cramps – mainly in my calves – come and go, so I try to treat them as I would prior to cancer by stretching, staying hydrated, and increasing my potassium levels.  (In other words, eating lots and lots of bananas!)

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Good Old Days

On October 24th, I attended a happy hour reunion with folks who worked for the old Holiday Corporation and Promus Companies (also known as Harrah’s Entertainment and Hilton Hotels).  I found out about the reunion through the online networking site, LinkedIn.  Over the summer, I had reconnected with dozens of former coworkers through this site.  It was interesting to learn what many of these folks were doing more than 10 years since I have seen them.

At the gathering on the 24th, I got a chance to see some of these folks in-person and share how our worlds have changed – and in some cases, stayed the same – over the years.  It was incredible to reminisce about our jobs and work experiences and feel as though we never left.  Some people appeared almost the same as I remember them, including a former executive secretary who saw me and said, “Mr. Ken, it’s so good to see you.”

These people, those companies, and those days were when I “cut my teeth” in the corporate world and learned – sometimes not quickly enough – what I cared about and what I wanted out of work.  There was a certain comfort level with these people…a certain understanding that we have all been together during a very unique time in our lives, and that all of us belonged, like players on a team, or members of a fraternity, or survivors of a horrific event.  There was – and still is – a special bond we have that others will never understand or feel.

For me it was also a unique evening because while I shared my new work (career?) path, I did not, however, talk at all about my cancer.  Prior to the 24th, I thought a lot about what I would say if people asked about me and my world.  I decided to see how the evening progressed, and, as it did, most of what we talked about centered around work, career, and family.  And that was just fine with me.  Outside of close friends, former high school classmates, fraternity brothers, and family I have not shared my story with many others.  Frankly, it will probably stay that way.

So young!  Yes, that is me!

The evening was fun, but, for me, ended on a rather bad note. While I was getting into my car, I had a massive leg cramp that caused my entire left leg to spasm.  Fortunately I was still parked, and the spasm stopped.  But it was scary and painful.  Once again, a reminder that my world will never be the same.

Week Nine

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This week (October 22nd) marks the ninth week of my treatment.  I’m beginning to sound like a broken record, but there’s nothing new to report on the health front.  (Other than I need to stop eating so much junk food!)  I’m feeling pretty good and adjusting to my new job (see Working Man below), which is taking some getting used to – both mentally and physically.
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Working Man
This week also is the second week of my return to the working world.  I wasn’t out of work for very long compared to many, many other people.  Still, there is something ingrained in my psyche about being employed.  Maybe it’s a man thing, maybe it’s a generational thing…but I think most people want to have a purpose in their lives, even if it’s an 8 to 5 job that pays the bills and keeps food on the table.  It’s funny for me, because that’s exactly why I got out of the proverbial corporate world and went into teaching.  I wanted to do something with a true purpose…make a difference in young lives.  All of those cliches that are  attached to teaching, but, as I found out the hard way, are very difficult to quantify on a daily basis.
I returned to the world of work with rather ironic timing.  I found out about my new position two days before my October 9th CT scan.  Needless to say, I was both excited and scared that one piece of good news would be ruined by the other circumstance (cancer) dominating my life.  When I got the great news about my scan, it was as if prayers on both fronts had been answered simultaneously.  If that doesn’t reinforce the necessity of belief, I don’t know what does.
I’m not sure the utter seriousness of my situation this past summer ever really sank in with me.  I don’t know if it was denial, naivete’, or plain craziness that prevented me from completely going off the deep-end regarding my world as it appeared to spin out-of-control.  It may make more sense to many of you now, knowing that I was also out of a job, why I considered my circumstances to be a difficult journey, not just a fight.  It was the only way to keep my own sanity.
And now I’m a working man….It has been quite a change to go from the classroom back to the business world.  Strangely enough, though, the transition has not been as difficult as I first imagined.  Perhaps that was my negative side filling my head with doom-and-gloom.  Perhaps it was my psyche still battered and bruised from ten years of teaching.  Either way, it’s good to have a purpose, even if the true measure of purpose is being there for those who truly matter – my family.  That’s what really matters, and, I believe that is why this go ’round with the corporate world will be different, very different.  This time, I don’t have to prove anything – to myself or to anyone else.  If I work from 8 to 5, then I’ve done my duty,  I’ve given my time and effort, and – truly – that’s all that should matter.
So, to borrow a couple of lines from Geddy Lee of Rush….I guess that’s what I am, a working man.
It seems to me
I could live my life
A lot better than I think I am
I guess that’s why they call me
They call me the working man

And so the journey continues….have a blessed day.

Well, they call me the working man
I guess that’s what I am

Still one of the greatest live bands of the 1970s.



Week Eight

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This week (October 15th) marks week number eight (8) of my cancer treatment.  As you know from the prior post, I had an excellent report from my oncologist last Wednesday (October 9th).  Many folks will say that miracles do happen…I’ll just say that I believe in the power that’s all around us.  And I’ll continue to believe that there’s a reason and a purpose for the good and – unfortunately – the bad in our lives.  If my bad situation – with a great upswing – helps me, my family, and others around us better appreciate our world…then so be it!  As I’ve said many times before, my situation, my life (our lives), and this world are simply part of a journey.  If it makes me a stronger, more focused, more compassionate person – I’ll take it.  It is what it is…I don’t know who said that, but it makes perfect sense.

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My Son

Right after my terrific news on October 9th, I drove my son, Zach, and several classmates to Hoover, Alabama for a one-day quiz bowl tournament at the local high school.  Zach is in charge of the quiz bowl teams this year, and he, along with the teacher sponsor, coordinates all of the matches for his high school.  Prior to his junior year, Zach had never been highly motivated to be a leader in any activity he participated in: school, clubs, or sports.  He enjoyed participating, and he actively participated, but he never “rose above the tree tops” to lead in any activity.  And there’s nothing wrong with that, either.  We’ve never focused on you have to be a leader like many parents do.  As long as he enjoyed what he was doing, we let Zach be his own kind of participant.

Something changed, however, during the second half of Zach’s junior year.  He became much more involved in the nuisances of the quiz bowl group and became, at the end of the school year, the leader-elect for his senior year.  Note: Zach allowed Vicki and I to read his college essays.  One of them was an excellent piece about how a perceived failure during a quiz bowl match became Zach’s motivation to not only be a better player but to also motivate others around him to improve their play as well.  I think that essay gave me an insight into how Zach “evolved” from a participant to a leader.

For those of you who are not familiar with quiz bowl, it is essentially a competition among four-person teams who try to correctly answer questions about a myriad of subjects within a specified amount of time.  Think Jeopardy or Knowledge Quest, and you have a pretty good idea of how the competition works.  Student teams compete all around the country at the high school and collegiate levels.

The tournament in Hoover, Alabama was on Saturday, October 12th, so my spirits were flying sky high.  I had my great scan results on Wednesday plus I started my new job on Monday, October 14th.  I think having my eyes “wide open” from all that positive energy helped me to see my son in a new light.

The champs…almost.

Zach was not only responsible for coordinating entry into this tournament, he also selected teams – there were three teams representing his school – and he made sure everyone was focused on their role as a team member.  In addition, he was captain of the varsity A team, which would compete against other seasoned teams in the morning rounds.

I didn’t know it prior to our arrival at Hoover High School Saturday morning, but I would also act as unofficial score keeper for Zach’s group.  I had never been to one of these tournaments, and I had no idea what to expect.  I really had my eyes opened when I watched my son in action for the first time.  He was poised, focused, confident, encouraging, relentless, and competitive – highly competitive!  I didn’t recognize him as my own son…at least not the one I see at home every day after school.  Zach was in his element.  And – yes, I’m a very proud parent – he was awesome!  Not only was he the team’s captain, but he answered a majority of the questions in almost every match.  Incredible!  At one point, members of the opposing team came over to tell Zach that he did a great job.  As it turned out, he got an individual award for correctly answering a huge percentage of questions.

All in all, it was not a bad day.  Zach’s varsity team got eliminated in the semi-finals and wound up in third place (out of more than 50 teams).  Zach and his teammates were initially disappointed, but, as kids do, they quickly rebounded and enjoyed the long, monotonous (for me, the driver) trip back to Memphis.  I was exhausted when we finally got home, but I had a whole new appreciation and respect for my son.  He is truly a terrific young man.

Note:  As you’ll see in the picture below, the quiz bowl team is a very diverse group.  That was also what made my day with these young people – including my son – so special.  It was wonderful to see these kids interact with each other (and with students from the other schools).  They could of cared less what someone looked like, or where they came from.  They just wanted to compete and have fun doing it.  Yes, Zach’s school has a lot of diversity – I’ll talk about that in another post – and I’m glad it does.  As a country we need to come to a realization that our society is much more diverse than even a generation ago.  It was refreshing to be around so many faces that didn’t look like me.

We could all learn a lesson on getting along and being ourselves.

Start Spreading the News!

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I’ve been out of town the past couple of days, so I have not had a chance to post my latest news on this blog.  My October 9th scan results were great!  My tumors actually have reduced in size according to my oncologist.  As I mentioned on Facebook, my doctor does not smile very often, but he did on Wednesday.
This is awesome news, and we could not be happier.  It does not mean, however, that the tumors will completely go away – at least under the current treatment regimen.  But if I am able to continue taking the Gleevec, and the results stay consistent, then we can live with the status quo.  In other words, if I can lead a normal (whatever that is?), productive life, it’s fine by me.  I think Vicki said it best when someone began a “What if?” thread with me regarding Gleevec and my cancer.  She said we’re just happy for what we have right now, and we are simply living from day-to-day.  We’re not going to worry about the long-term forecast.
As I said at the beginning of this blog, my cancer diagnosis is a journey.  It will take twists and turns.  We just hope and pray that it doesn’t take too many.
Even “Old Blue Eyes” is smiling!
So, I stay on the current meds, and I get re-scanned in early December. 
More to come……….

Week Seven

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Today (October 8, 2013) is the end of week seven since I began drug treatment for my cancer.  Not much new to report.  As I stated in last week’s post, tomorrow – October 9th – I undergo a CT scan to see if the tumors in my right lung have responded to the Gleevec.  It has been difficult anticipating tomorrow’s tests, but I have been in a pretty fair mood, and compared to last month, that’s a big improvement.
Still, I don’t know what to expect, so I try to think of other things.  That strategy, however, has been tough because I’m not as motivated as I once was to exercise and to write. Tomorrow, as they say, is another day.
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Good Day Sunshine
It has been an absolute gorgeous day today (and yesterday) here in Memphis.  The temperature is around 71 degrees, and the sky is that color of blue that seems unreal.  There are absolutely no clouds in the sky!  I spent most of yesterday and this morning outside with Nixie enjoying the weather.  When you see the sky like it is, feel the wind blowing, hear it rustling the leaves that still hang in the trees, you realize there is a God.  Our natural world and all its beauty are just too perfect…too incredible…to be left to chance.  I can’t even begin to explain how at peace I am when I simply sit and absorb the world around me.
Today’s sky from my driveway.

When the weather is like this, there seems to be nothing else around me – except Nixie, of course. Not the workmen across the street, not the obnoxious kid playing hoops on the driveway behind our house (he talks to himself, it’s very annoying).  Not the general hum and strum of suburban life.  Nothing.  Just me, the wind, and the sky above.  Gorgeous…and peaceful.
I had to rewrite this post because I originally wanted to title it Beautiful Dreamer.  But last night another song came into my head.  One that I think captured my mood today – Good Day Sunshine by The Beatles.

I need to laugh, and when the sun is out
I’ve got something I can laugh about,
I feel good, in a special way.
I’m in love and it’s a sunny day.

Given what tomorrow may bring, I definitely need to laugh.  And, yes, I do feel good in a special way.  I know that I can’t control tomorrow’s outcome.  It’s all part of the journey, and I’ve got to have faith.

Faith will see me through…I now know that.
We’ll talk soon.